Rare Bone Disease Patient Organizations Joining Together to Expand
Bone-Related Awareness, Research and Advocacy
OBJECTIVES
n Mentoring and Knowledge-Sharing
n Networking Opportunities
n Joint Bone-Related Projects
n Joint Awareness and Advocacy Activities
n Integration of Rare Bone Disease Groups Into Bone Community
PROGRAMS
n 1st Advances in Rare Bone Diseases Scientific Meeting
October 22-24, 2008, Bethesda, Maryland
n Participation in Scientific Meetings to Exchange Knowledge and to Promote Rare Bone Diseases (Orthopaedic Research Society, American Society for Bone and Mineral Research)
n Website to Provide Resources for Rare Bone Disease Organizations
n Meetings to Exchange Knowledge, Provide Mentoring, and to Determine Priorities for Expanding Awareness, Research, and Advocacy
For more information contact usbjd@usbjd.org or kathleen@harpervision.com
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